liz_marcs: Xander icon with legend, "I've known sorry and have learned to comfort the wretched." (Xander_Known_Sorrow)
liz_marcs ([personal profile] liz_marcs) wrote2013-01-25 03:28 pm

Brief Hiatus Necessary

After nearly two years of Dad!Marcs serving as something of a medical mystery, as well as multiple hospital stays and multiple stays in rehab facilities, we finally got an actual diagnosis this week.

Multiple System Atrophy — Parkinsonian (MSA-p), aka, Parkinson's meaner, nastier, deadlier cousin. And unlike Parkinson's, it doesn't come on slowly. It hits you like a hammer blow from Thor.

No, the news is not great. Yes, I'm kind of still processing.

No, my family right now isn't thinking long-term plans. The short-term plan is to keep Dad!Marcs moving as much as possible for as long as possible.

And yes, it took almost two years to get the right diagnosis, and even then it's because we happened to finally cross paths with a neurologist who just happened to specialize in this particular rare disease during Dad!Marcs's latest hospital stay.

So, now we're at least armed with the right medication regimen (which seems to be doing him better), and the right kind of physical therapy, and the right kind of other stuff that goes along with the right diagnosis.

Aaaaand, I'm rambling. Sorry.

In any case, I know I promised to deliver the second half of a fic this weekend, but it's not gonna happen. I've picked at the fic, but really not much more than that. Hopefully next weekend or the weekend after I'll be able to post a finished product. For the next week or two? Not gonna happen.

I apologize in advance for the delay.

In any case, I'm blacking out for this weekend (at the very least).
skarman: (Default)

[personal profile] skarman 2013-01-25 09:58 pm (UTC)(link)
Go and take care of your dad, be with your family. Take all the time that you need, alright? I'm keeping you, your father and family in my prayers.

jetpack_monkey: (Default)

[personal profile] jetpack_monkey 2013-01-25 10:56 pm (UTC)(link)
Oh geez. I am so sorry to hear this. Take care. I'll be thinking good thoughts.
wesleysgirl: (Default)

[personal profile] wesleysgirl 2013-01-26 12:23 am (UTC)(link)
That's terrible, I'm so sorry. I'll be thinking so many good thoughts for him and all of you. *Hugs*
carolyn_claire: (Default)

[personal profile] carolyn_claire 2013-01-26 02:55 am (UTC)(link)
Look after yourself, and let us know if there's any way we can help. I'll be thinking of you.
starshadow_rivaulx: (Default)

[personal profile] starshadow_rivaulx 2013-01-26 07:18 am (UTC)(link)
As iffy as the situation is, at least you have a proper diagnosis - medical mysteries are maddening things. Take care of yourself, and I'll be remembering you in prayer.